‘I Am: Céline Dion’ Director Said Legendary Singer Insisted On Keeping Muscle Spasm Footage In Documentary

Céline Dion’s documentary, “I Am: Céline Dion,” is now officially released on Amazon’s Prime Video streaming service. The documentary is a love letter to Dion’s fans, according to the singer, as it tracks her journey after being diagnosed with stiff person syndrome, a neurological condition.

One of the scene’s that stuck out to fans the most was footage of her having a violent muscle spasm, a vulnerable moment that the singer insisted remains in the documentary, according to the film’s director, Irene Taylor, who recently spoke to Variety magazine about the specific scene. 

Embed from Getty Images

“[Upon being shown the footage] the very first thing she said was, ‘I think this film can help me,’and then she said, ‘and I don’t want you to cut out that scene, and don’t cut it down.’”

Taylor herself also discussed how she was shocked during filming, as she wasn’t expecting to film Dion having a spasm throughout the documentation process. 

“Statistically, the likelihood that that would happen while my camera was rolling is extraordinarily rare,” she said

“No one expected that to happen. We never discussed, ‘What if that happens, what do we do?’ Never even had that conversation, because we just assumed it wouldn’t happen.”

Taylor described the moment when her spasm happened, stating that “it just snowballed very quickly.” Before the incident occurred, Dion had finished two days of recording, which was the first time she had recorded in four years. 

Embed from Getty Images

In her interview, Taylor said that she was uncertain and uncomfortable initially when the spasm began, however, she kept holding onto her camera and boom mic. 

“I realized, ‘You know what? I have a job to do, too’… But the human part of me was very uncomfortable. But I really believe in the power of nonfiction, and I really believe that we can transport people in their own imagination by showing them real things, not scripted things,” she said. 

Dion initially shared her diagnosis with the public in a video post on her social media in 2022. 

“The disorder is a rare, progressive syndrome that affects the nervous system, specifically the brain and spinal cord,” according to the National Institute of Neurological Disorders and Stroke

Following the announcement of her diagnosis, Dion also canceled her “Courage World Tour.” She also told sources close to her that she would likely never tour again.